FrançaisResources for you
This letter is to be used by healthcare professionals to counsel patients who have been diagnosed with XLH and their families.
Resources for your patients
Helpful websites to assist your patients with their XLH journey
CANADIAN XLH NETWORK
The XLH network is a worldwide community of patients, caregivers, and healthcare professionals.
KIDSBONESCANADA
Educational events in support of childhood-onset bone disorders in Canada for clinicians, patients, and families.
CANADIAN ORGANIZATION FOR RARE DISORDERS
Rare disease public policy advocacy, education and research.
REGROUPEMENT QUÉBÉCOIS DES MALADIES ORPHELINES (RQMO)
Rare disease information for people living in Quebec.
GLOBAL GENES
Global Genes is a rare disease patient advocacy organization that works to build awareness, educate the global community, and provide connection and resources.
GARD
GARD maintains a list of rare diseases and related terms to help people find reliable information.
Connect the symptoms
Suspect XLH?
Connect their symptoms and diagnose with the applicable tests.
Patient case studies of XLH
See sample case studies of adults and children.
Diagnosing XLH
Learn more about how to diagnose XLH through testing.